Sadly, basketball player Robert Horry’s 17 year old daughter Ashlyn who was born with the rare disease called 1p36 Syndrome, passed away from her illness.   A chromosome disorder, 1p36 Deletion Syndrome is usually characterized by distinct facial features including a pointed chin, deep-set eyes, a flat nasal bridge/nose, low-set/ small ears, a small mouth with down-turned corners, moderate to severe intellectual disability, delayed growth &  limited speech ability. It is estimated that one in every 5,000 to 10,000 births have 1p36 occur yet  so many go undiagnosed. 

According to BlackSportsOnline:

Ashlyn Horry. Born April 2, 1994, with severe respiratory issues and a host of other complications requiring a six month stay in Texas Childrens Hospital’s Neonatal Intensive Care Unit, she has endured. After numerous tests, multiple surgeries and several near death experiences, Genetic Physicians found that she had a rare chromosome abnormality; partial deletion of her number 1 chromosome (short arm). Not much information was known at the time to have any frame of reference or “road map” to go by. In fact, the abnormality didn’t even have a name. In just recent years, a name has been attached to this chromosome abnormality. It is now known as 1p36 Deletion Syndrome.

So sad.  RIP dear.  If you want to donate to Ashlyn’s foundation, click here.


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