Health Focus: Robert Horry’s Daughter Dies from Rare Disease
Sadly, basketball player Robert Horry’s 17 year old daughter Ashlyn who was born with the rare disease called 1p36 Syndrome, passed away from her illness. A chromosome disorder, 1p36 Deletion Syndrome is usually characterized by distinct facial features including a pointed chin, deep-set eyes, a flat nasal bridge/nose, low-set/ small ears, a small mouth with down-turned corners, moderate to severe intellectual disability, delayed growth & limited speech ability. It is estimated that one in every 5,000 to 10,000 births have 1p36 occur yet so many go undiagnosed.
According to BlackSportsOnline:
Ashlyn Horry. Born April 2, 1994, with severe respiratory issues and a host of other complications requiring a six month stay in Texas Childrens Hospital’s Neonatal Intensive Care Unit, she has endured. After numerous tests, multiple surgeries and several near death experiences, Genetic Physicians found that she had a rare chromosome abnormality; partial deletion of her number 1 chromosome (short arm). Not much information was known at the time to have any frame of reference or “road map” to go by. In fact, the abnormality didn’t even have a name. In just recent years, a name has been attached to this chromosome abnormality. It is now known as 1p36 Deletion Syndrome.
So sad. RIP dear. If you want to donate to Ashlyn’s foundation, click here.
Email me at Admin@noirgossip.com Read more from this author
Like this post? Subscribe to my RSS feed and get loads more!